Skyler celebrated her 2nd month birthday on April 9th, the day after Easter. Mom entered her name in a raffle drawing at a local restaurant and it appears that Skyler is a good luck charm. The next day, Mom got a call from the restaurant and said that Skyler won the main prize — which is a giant 4 foot bunny. Honey Bunny was her Easter/Birthday present and the new resident in her little kingdom.
It’s been a week since Skyler came home and we’ve been so busy caring for her that we haven’t had much free time to update the blog, until now.
So far things are going very well. Our little princess is such an angel and doesn’t fuss too much. The only challenge for us is keeping up with her scheduled medications and continuous feeds. We did encounter a huge hurdle a few days ago from acquiring her supply of enteral feeding bags. The bags were supposed to be sent via UPS straight to our home, but for some reason, they were never shipped. Luckily Skyler’s case manager from her first NICU was able to help us get 20 days worth of bags until our insurance company takes care of the problem…hopefully sooner than later.
Sweet Baby Skyler, My heart is singing knowing you are home!! Sleep, grow and be comforted in the loving arms of your parents.- by Great Auntie Lorna
Today was a great day because Skyler is finally home. We weren’t expecting this to happen yet since the plan has always been to transfer her to the hospital closer to us and then bring her home a few days later. But she’s been stable for quite some time, has done a great job with the feeding increases (up to 19ml/hr now), there have been no problems with her G-tube and overall she’s as ready as she’ll ever be.
Skyler’s Mom took the day off from work to visit Skyler at the NICU in Oklahoma. It was a good visit. Skyler is already 6 lbs and 1 oz and doing well with her continuous feeds of 15 ml per hour. Now that she is able to tolerate full feeds, she is all set to be discharged and return to her NICU in Arkansas. (more…)
It’s been almost two weeks since Skyler was taken to Oklahoma for her surgery. It was difficult for us to leave her yesterday because we won’t be able to visit her for the next five days (we need to return to work back in Arkansas). Though it’s not all sad for us, Skyler is recovering really well and before we left the NICU she even played with us!
Our dear baby Skyler, hello darling baby, your cousin Niccol and I are looking at your pictures now, you are so cute and adorable. We would like to hug and kiss you but we are so far away from you. But even though, always remember that we love you so much and that you are always in our thoughts. Take care our darling angel, Jesus is always by your side and making you well. We love you always!- by Aunt Vivian
Skyler is still at the NICU in Oklahoma recovering from her g-tube and fundoplication surgery. Even though she’s been in the NICU since she was born, we can still participate in her care. Every four hours we like to help in changing her diapers, taking her temperature, changing/removing her hand and foot splints and giving her hands, feet & legs a nice massage with some stretching. (more…)
It’s been a five days since Skyler had her g-tube surgery, yet you can see how fast she recovered. Having family and friends who continuously support and pray for Skyler definitely helps. Speaking of family, Skyler’s Grandpa traveled nine hours to see our little angel. In this video, you’ll see how Skyler is very relaxed while her Grandpa strokes her head.
Thank you so much for sharing Skyler`s story and her life through her website. She is the love of my life and I thank God every day for her, and that you are her parents. She has already amazed us more than once in her short life, and I know she will teach us more about love and life than we ever imagined...I love you sweet Skyler.- by Grandma Sue
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