Tag Archives: Lissencephaly

Mom Came to Visit

Skyler’s Mom took the day off from work to visit Skyler at the NICU in Oklahoma. It was a good visit. Skyler is already 6 lbs and 1 oz and doing well with her continuous feeds of 15 ml per hour. Now that she is able to tolerate full feeds, she is all set to be discharged and return to her NICU in Arkansas. (more…)

Routine in the NICU

Skyler is still at the NICU in Oklahoma recovering from her g-tube and fundoplication surgery. Even though she’s been in the NICU since she was born, we can still participate in her care. Every four hours we like to help in changing her diapers, taking her temperature, changing/removing her hand and foot splints and giving her hands, feet & legs a nice massage with some stretching. (more…)

Our Little Angel Smiles

This video was taken just two days after Skyler’s g-tube and fundoplication surgery. Due to Skyler’s frequent muscle spasticity and seizures it’s very rare to see her smile. We were very lucky to finally catch her smiling and fortunate to be able to share it to the world.

 

how to leave a comment  Respond to this post? Just click here!

After Skyler’s Surgery

Because of Skyler’s lissencephaly, she is at high risk of asphyxiation.  To minimize the risk and also help with her reflux,  Skyler got her g-tube and fundoplication surgery at five weeks old.

(more…)