Routine in the NICU

Skyler is still at the NICU in Oklahoma recovering from her g-tube and fundoplication surgery. Even though she’s been in the NICU since she was born, we can still participate in her care. Every four hours we like to help in changing her diapers, taking her temperature, changing/removing her hand and foot splints and giving her hands, feet & legs a nice massage with some stretching. This is something we always look forward to, makes us forget that our circumstances are different from other new parents. In this video, Skyler’s Dad is changing her diapers. Before she always has seizures or spasms during her four hour routine, but now at 6 weeks old, she doesn’t seem to mind and appears to enjoy a little bit of activity.



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