Rest in Peace Skyler Sue

On Sunday, May 13th we made the heartbreaking decision to let Skyler pass away. It’s been a little over 12 hours now since she passed and so far the pain has been¬†excruciating. Even though it hurts to be at home without her, we know we made the right decision.

Skyler’s condition quickly deteriorated once she reached the Pediatric ICU in Tulsa. We both thought that maybe we’d be lucky enough to have a few more days…maybe even weeks with her, but after learning about her kidney failure, collapsed lungs, further brain damage and soon to be failing liver…there was really just one choice to make. There was no way we could stand by and watch her suffer while having unrealistic goals of her making any kind of livable recovery.


We’re very fortunate that her closest family members were all there in the end and able to say one last goodbye. Once her life support was removed she passed very quickly and with very little pain, fittingly in her Mother’s arms. We had always hoped for her to live at least a few years, but instead she lasted just 3 months & 4 days. Overall, she spent most of her life in a hospital (1 in Arkansas, 1 in Oklahoma), but her longest stay in any one place was at home with her family. We can only hope that our home…her home is where her spirit will live on forever.


We will miss you Skyler Sue and despite your limitations, you were always perfect to us. You filled us with more joy in 3+ months than we will have in a lifetime. You’ve taught us to appreciate every day we’re given and to show love & affection to those who matter the most. The pain of losing you will never go away, but we take comfort in knowing that you’re in a better place now, where you can spread your wings and live up to your full potential.


So goodbye Skyler…Sweet Pea, Little Princess, Our Angel…your memory will never fade and knowing that we will see you again someday is enough to keep us going.

5 Responses to "Rest in Peace Skyler Sue"

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  1. Don Pendergraft

    May 14, 2012 at 8:42 am

    I’m so very sorry. May her memory be eternal!

    O Lord who watches over children in the present life and in the world to come because of their simplicity and innocence of mind, abundantly satisfying them with a place in Abraham’s bosom, bringing them to live in radiantly shining places where the spirits of the righteous dwell: receive in peace the soul of Your little servant Skyler Sue, for You Yourself have said, “Let the little children come to Me, for such is the Kingdom of Heaven.” Amen.

  2. Roland Godoy

    May 15, 2012 at 2:31 pm

    We are so sorry for you loss. Our condolences to you and your family.

  3. Margie Story

    May 15, 2012 at 8:36 pm

    Lexis and Brian I am very Sorry, I wish it’s just a dream.
    In the loss of someone so special in our life. Although no words can ease the pain.
    Faith and Courage in our self. keep us banish the sadness determination to make each day
    a more wonderful day than the day before.

    May the peace that comes from the memories of Love shared comfort you now and in the days ahead.
    May you take comfort in knowing an Angel Skyler is watching over you..
    We will see them again.. with their open arms..

    Just know that my arm are wrapped around you always.. keep you in my prayer..

  4. Jenni Richards

    May 16, 2012 at 1:48 am

    I stumbled across your site and just wanted to express my deepest sympathy to you and your family. I am so touched by this amazing tribute to your beautiful angel and thank you for sharing it. It is such an awesome example of parental love, faith, hope, courage and compassion. I lost a son in March and am having a hard time. Please know that you have touched my heart and gave me a bit of comfort and healing. May you also find comfort and healing.

  5. Laynie C. Williams

    May 17, 2012 at 11:24 am

    May God bless you and your family. Even though I don’t know you all, my heart broke for you as I read through your blog yesterday. What a sweet baby, so courageous and strong. What wonderful parents Skyler Sue was blessed to have. I will continue to pray for you and your family.

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