It’s been a week since Skyler came home and we’ve been so busy caring for her that we haven’t had much free time to update the blog, until now.

So far things are going very well. Our little princess is such an angel and doesn’t fuss too much. The only challenge for us is keeping up with her scheduled medications and continuous feeds. We did encounter a huge hurdle a few days ago from acquiring her supply of enteral feeding bags. The bags were supposed to be sent via UPS straight to our home, but for some reason, they were never shipped. Luckily Skyler’s case manager from her first NICU was able to help us get 20 days worth of bags until our insurance company takes care of the problem…hopefully sooner than later.

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