Today was a great day because Skyler is finally home.  We weren’t expecting this to happen yet since the plan has always been to transfer her to the hospital closer to us and then bring her home a few days later.  But she’s been stable for quite some time, has done a great job with the feeding increases (up to 19ml/hr now), there have been no problems with her G-tube and overall she’s as ready as she’ll ever be.

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