Saturday, Skyler had a visit from her therapist for a physical evaluation. The therapist was so impressed with Skyler and how she can hold her head up. Skyler also showed signs that she can focus and follow sounds from a toy’s rattle. Mom learned a lot from the therapist and what she can do to further stimulate Skyler. In the following week, Skyler will meet the rest of her therapists – Physical, Occupational and Speech. We’re just happy that the therapists can come to our home and give her 1-on-1 private sessions.

We have been bathing Skyler daily, but up until Sunday she’s only been getting sponge baths. Mom bought her this little infant tub called the Puj and it fits right into the sink, which makes Skyler’s bath more convenient. Skyler looked comfortable and happy during her puj bath…no myoclonic jerks or spastic movements at all. Mom knew Skyler would enjoy the water because she is a Water Dragon (based on her Chinese horoscope, 2012 is the year of the Water Dragon). Though we need to be extra cautious when bathing her in the water. Due to the extra moisture, Skyler’s g-tube can easily be pulled without much effort (and that’s the last thing we need).