http://skylersue.com/article/skyler-sues-memorial-garden/ A site for our Skyler Sue who is diagnosed with Lissencephaly Wed, 15 May 2013 01:24:29 +0000 hourly 1 https://wordpress.org/?v=4.1.41 http://skylersue.com/article/skyler-sues-memorial-garden/#comment-85 Mon, 25 Jun 2012 22:25:53 +0000 http://skylersue.com/main/?p=1502#comment-85 God’s Peace and Blessings
He’s Healing Your Miracle

]]> http://skylersue.com/article/skyler-sues-memorial-garden/#comment-81 Wed, 20 Jun 2012 14:58:16 +0000 http://skylersue.com/main/?p=1502#comment-81 What a beautiful sacred space you have created. My prayer is that it will bring you peace as the flowers bloom, the birds sing, and you are “kissed” by the breeze and warmed by the sun. . .sending light and love your way.

]]> http://skylersue.com/article/skyler-sues-memorial-garden/#comment-80 Wed, 20 Jun 2012 00:18:38 +0000 http://skylersue.com/main/?p=1502#comment-80 I’m so sorry for what you and your husband are going through. My husband and i came across your blog one evening as i was writing my story on the march of dimes, share your story. Our daughter Marissa Alessandra Gomez was born with a heart defect, truncus arteriosis. She stayed in NICU from birth (May 11, 2012) to the day she passed. I carried her all the way to 39 weeks. Two weeks later, i learned that she tested positive for DeGeorge syndrome. We waited for surgery and were given lots of hope from doctors that she would go home very soon. On May 29th, i got a call and we rushed to the hospital. Marissa’s heart rate dropped and they were doing resuscitations. We asked the doctors to stop and they did 40 minutes later. I feel the same way you do. Seeing a baby section, pregnant women, babies..anything at stores always make me think about Marissa. We didn’t get to take her home but it still hurts. Staying busy, watering our plants, buying a puppy and staying out of the house is what we do to keep our minds busy. I still cry in the parking lot while leaving Target from seeing pregnant women or even running into a onesie or smelling her in my room. I miss my baby so much. I want to kiss her again. I want to hold her again. I never wanted her to suffer and know that she no longer does but it’s still difficult. We are getting counseling and believe me when i say this…you, your husband, grandparents, the whole family are in our prayers. Take care! You all are wonderful and amazing parents!

]]> http://skylersue.com/article/skyler-sues-memorial-garden/#comment-79 Wed, 13 Jun 2012 18:48:22 +0000 http://skylersue.com/main/?p=1502#comment-79 Yes and it already does

]]> http://skylersue.com/article/skyler-sues-memorial-garden/#comment-78 Wed, 13 Jun 2012 16:20:38 +0000 http://skylersue.com/main/?p=1502#comment-78 I hope that the garden brings you peace and makes you are of her presence daily!

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